The nickname for children with feeding tubes is "tubies" ;-)
Our tubie in her new chair :-) She really loves the new vantage point!
This is a blog about the joys of raising Sophia. It is intended to be REAL, inspiring, and shed light on the experience of having a terminal child. I hope that our experience will help people in one way or another. I could have never imagined having a terminal baby with special needs. The news was devastating. But there is joy in this journey. And life lessons to be learned. God knows us, individually, and he blesses each of of our lives daily. THIS, IS SOPHIA'S STORY...
Wednesday, February 7, 2018
Feeding Tube Awareness
A friend on my support group mentioned it's Feeding Tube Awareness Week :-) I am so incredibly grateful to Sophia's surgeon for having the guts to cut open a baby. And to my husband for suggesting that we get the feeding tube placed before bringing her home. It was not an incredibly difficult decision, as our baby needs to eat to live. But it was surreal... to give someone permission to do that. I know her feeding tube is one of the main reasons Sophia is doing so well! :-)
The nickname for children with feeding tubes is "tubies" ;-)
The nickname for children with feeding tubes is "tubies" ;-)
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