- We are happy to report Sophia has turned a corner! I may go into detail later but it was the hardest day she's had on earth so far :-( We really thought we were losing her today and we were terrified. Her heart rate was above 200 for the better part of 24 hours and she stiffened and grimaced in pain almost constantly 😥 However! A couple hours ago she stopped writhing in pain and started sleeping! We aren't out of the woods yet but things are looking up ;-)
This is a blog about the joys of raising Sophia. It is intended to be REAL, inspiring, and shed light on the experience of having a terminal child. I hope that our experience will help people in one way or another. I could have never imagined having a terminal baby with special needs. The news was devastating. But there is joy in this journey. And life lessons to be learned. God knows us, individually, and he blesses each of of our lives daily. THIS, IS SOPHIA'S STORY...
Saturday, September 2, 2017
Still in the hospital but doing better!
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