This is a blog about the joys of raising Sophia. It is intended to be REAL, inspiring, and shed light on the experience of having a terminal child. I hope that our experience will help people in one way or another. I could have never imagined having a terminal baby with special needs. The news was devastating. But there is joy in this journey. And life lessons to be learned. God knows us, individually, and he blesses each of of our lives daily. THIS, IS SOPHIA'S STORY...
Thursday, November 30, 2017
Sick again
Well I guess we knew this good streak couldn't last forever, but I was really hoping it would last through the holidays :-( There's something wrong with her again. The nurse said she was up all night throwing up and didn't hardly sleep at all. Her HR is high....her oxygen a little low....and she's whimpering in her sleep :-( I'm wondering if this is why she was having breakthrough seizures recently, maybe she's caught a bug :-(
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