Happy Mother's Day to all of the wonderful mothers I know! Remember that even on the bad days you are doing a really good job :-) Especially happy Mother's Day to my mom and my mother-in-law :-) Your gift will come in the mail wednesday and when you open it I want you to think of this video :-) Sophia's favorite kind of weather is the wind :-)
https://m.youtube.com/watch?v=OLCAiLgzlnA
Or type "Sophia Jane-Marie Loves the Wind" into youtube
Love you!
A lot went on this week and for some reason my photos aren't loading so maybe I'll have to post a second one this week to catch up :-)
Also wanted to update you on Sophia's EKG :-) it came back completely normal, nothing wrong with her heart :-) and ever since her neurologist had us increase one of her medications for suspected breakthrough seizures, her bradycardia has almost disappeared :-)
This is a blog about the joys of raising Sophia. It is intended to be REAL, inspiring, and shed light on the experience of having a terminal child. I hope that our experience will help people in one way or another. I could have never imagined having a terminal baby with special needs. The news was devastating. But there is joy in this journey. And life lessons to be learned. God knows us, individually, and he blesses each of of our lives daily. THIS, IS SOPHIA'S STORY...
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