Staycation and respite

It's been a harder week and a half, with a lot of good memories sprinkled in between. Sophia's oxygen was dropping for days and we were having to turn up her machine quite a bit. I mean we got 3/4 of the way to maxing out on the adult concentrator :-( But there was no reason we could find for it to be dipping. She's not sick, her lungs sound good, she wasn't struggling to breathe, we checked all her machines, switched out all the filters and sensors. It was just, a mystery. And then after a few days things went back to basically normal. We are relieved now, but for a few days we had constant worry, as much as we try not to.
We trust the Lord. What we pray for a lot is that the timing will be right for all of our children. We should (all) pray for specific things that we want. But we are also supposed to submit to God's will. Trying this week to strike a balance.
Alma 36:3 " ..... for I do know that whosoever shall put their trust in God shall be supported in their trials, and their troubles, and their afflictions, and shall be lifted up at the last day."

Memories this week...

Took the kids on a staycation while Jason had a work retreat.
Cedar Breaks Monument (bucketlist item!)

I particularly like Sarah and her dolly Wendy in these two photos ;-)

Swimming (in the same swimsuit Sarah wore at her age ;-)

 This girl LOVES to swim!!!

Snuggling at the hotel on our "staycation"

Random pics from the week...

Sophia under her sign Daddy made her (finally got it hung in her new room)  ;-)

and FINALLY got the family pictures hung too. The kids say it takes a long time for me to get to things, gee I don't know why haha ;-) But to me it finally feels like home when I hang our pictures ;-)

Sophia's home bipap (shout out to my sister who's getting one too!). She's had it since Primary Children's this summer but I don't think I've put a picture of it on here. She only wears it when sleeping but it really improves her quality of life.

We got some pet fish. Max re-names them every couple of minutes ;-)

Sophia laughing at her silly brother and constant companion ;-)

https://www.youtube.com/watch?v=hz4gsW8GtkQ

In other good news we FINALLY got everything in line for respite and have had a few breaks this week! I was so excited to be out and taking breaks with Jason that I totally forgot to take even one picture for proof haha ;-) 

We even got to go to the temple Saturday which was an incredible relief. In the celestial room I read in the scriptures about the mysteries of God and felt comforted. We don't know everything, but we do know enough. And one day we will understand it all :-)