This is a blog about the joys of raising Sophia. It is intended to be REAL, inspiring, and shed light on the experience of having a terminal child. I hope that our experience will help people in one way or another. I could have never imagined having a terminal baby with special needs. The news was devastating. But there is joy in this journey. And life lessons to be learned. God knows us, individually, and he blesses each of of our lives daily. THIS, IS SOPHIA'S STORY...
Monday, April 8, 2019
Primary Children's Again
Sophia was life-flighted to Primary Children's last night. She was struggling to breathe and her BiPAP wasn't helping because she was breathing through her mouth. So we had to come up here and get the astronaut mask :-) She's much better now with the breathing support. It's aspiration pneumonia again. It began with a common cold, again. We are anticipating a shorter hospital stay this time. We are tired, but grateful, and hope to see her smile again soon ☺️
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