The Eye of the Storm

This is a blog about the joys of raising Sophia. It is intended to be REAL, inspiring, and shed light on the experience of having a terminal child. I hope that our experience will help people in one way or another. I could have never imagined having a terminal baby with special needs. The news was devastating. But there is joy in this journey. And life lessons to be learned. God knows us, individually, and he blesses each of of our lives daily. THIS, IS SOPHIA'S STORY...

Sunday, August 4, 2024

A Logistical Day In The Life Of Sophia

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The first year that Sophia was born, a friend was at my house. She noticed that I had started writing a list on the window. All the extra th...
Thursday, August 31, 2023

I'm Not Rocking Her to Sleep Anymore

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She's Okay. Just in case the title made you scared. But I'll get to that. First, Wow. It's been a long time. 3 years since I...
Saturday, November 28, 2020

Lava Hot Springs

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 Tonight I'm grateful for the opportunity to take Sophia to a beautiful hot spring and make a memory. We sat in the water for about...
Friday, November 27, 2020

My Four Babies

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 Tonight, I was sitting around talking with my MIL&SIL's about giving birth. So tonight, I am grateful for my four babies. My girls ...
Thursday, November 26, 2020

Thanksgiving 2020

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 Tonight I'm grateful for a wonderful family in law, for food, and for little things that remind me of a great childhood. For example, t...
Wednesday, November 25, 2020

Dang it!

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I forgot to post gratefullness yesterday! Ack! It's just SO busy....so MANY things to do to keep everything in this family running smoot...
Monday, November 23, 2020

Night Nurses #givethanks

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 Tonight I'm grateful for our night nurses. We didn't have one last night, for the first time in a long time. I forgot how much we d...
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