Some things you can't control

Most of the time we almost just want to have answers about what's going on with Sophia so we can help her. Even if it's bad news. We can't control or change what is going on, but knowing helps us help her. So in an odd way sometimes getting bad news, is actually good news.

For a change today I was glad that we did not get an answer. I was afraid it was going to be what they were testing for (infantile spasms), but thankfully it is not! I'm glad because from what I read those aren't very easily controlled. So although we are still looking for answers as to what this new movement is, we are glad that it is NOT West Syndrome!

Waking up this morning....  :-)

EEG (it looks like she's in a copy machine huh)

Good advice (for everyone) from a book I'm reading: 

"What are the things you can't control in your present situation? What are the things you can and should control? How can you respond to them in a way that keeps God in the picture?" (from the book "A Different Dream for My Child")


Everywhere Sophie is, Max is also :-) If she's laying in front of the fire, he's pushing his bus on the fireplace...

 If she's in her cradle, he pushes a chair over to adjust her animals....

Or play her piano....