Girls Trip

Every year there's a girls trip on Jason's side. Last year Sophia and I did not get to go bc she was sick :-( This year we made it!! (mostly bc they drove most of the way ;-) Thank you dearly ladies :-)
I'm not going to lie it was hard getting out of the house. It was even a little scary. I haven't stayed anywhere overnight with her, except the hospital, since last summer. She doesn't travel as well as she did when she was a baby. She's bigger and harder to handle. She's got more machines and medications and complications.
She did amazing though. It was like this miracle. Sophia throws up every day. Somehow she didn't throw up once and actually hasn't since we've been home either! She didn't have any seizures, she was moderately dystonic from time to time, but all in all she had a great time.
As for me, it was so nice and so healing. To talk and laugh about normal stuff. A handful of times I even forgot how hard our life is. I felt, almost, normal. I'm so glad I went.
Bringing Sophia in public was interesting as well. I even saw the doctor who delivered her. It was nice that she is still here and I could show her to him. He was telling his family how she's beating the odds :-) It's so nice that she is too.
Everyone notices her. Everyone is polite and accommodating. Most of all I love it when people are brave enough to ask questions. I find that much more comfortable than awkward silence ;-)
Anyways the trip was a success and I'm glad we were brave and did it.
And now.....it's time to buckle down and move!!! ;-)

Grandpa Hayes was driving through and stopped to see Sophia ;-)

Oh and I COULD NOT have done it without my SIL Megan who helped drive me everywhere ;-)

Thanks everyone for making this happen! It was wonderful.