Two Steps Forward, One Step Back

Sophia was moved out of the PICU yesterday. She had a really good day yesterday, we got a lot of smiles out of her, and we just wanted to take her home.

https://youtu.be/tp_GLflDCY0

or type "Sophia getting better" into youtube

Pretty Nail polish brought by Aunt Mel ❤

But last night was a rough night. Her pnemonia and flu still seem to be getting better, but now she's doing a lot of stuff that looks like seizures, she's throwing up more, and she had some low temperatures this morning :-( So now we are doing a 24 hour EEG. Which means we will be here for two more nights at the very least :-( She's still in good spirits though ;-)

We have had many more visitors ;-) Jett's mom came by (they wouldn't let her in to see Sophia though bc of visiting hours... boo). Our friend Justin came by, Jason's friend Bruce, and Jason's brother Josh and his family. Jason's siblings are helping with Max.

I have to say we're tired of being here. We miss family life. We miss Max, and he's having fun, but he misses us too. We do see him every day but it's not enough. Monday Michael and Sarah WOULD be coming home from their Dad's but we won't be seeing them. They are going to the Hayes family reunion, and we're glad about that. But we wish we were going too so we could be together.

Ugh. I really hope we get to bring her home soon.

Jason and I taking a break in the garden :-) I truly wish I were a robot that didn't need to sleep eat or take a break :-( But at least she's got the best babysitters in the world right now :-) ❤