Poor little Chase is gone. He's home with Heavenly Father now. He was only home a few hours, he opened his eyes, he smiled, and he was gone. I appreciate your prayers for him. I know they were answered because his mother said she feels "so at peace". I believe Chase is OK now. It is his family that will need continued peace in the coming weeks, months, and years. I'm sure a few more prayers would be appreciated if you don't mind ;-)
Although the good certainly outweighs the bad, I always knew this would be the hardest part of being in a support group. Sweet Chase touched my heart with the pictures and videos his mom shared. Especially bc his beautiful eyelashes remind me of Sophia's. Seeing these kids go makes for a hard day emotionally. Especially in cases like his bc he was otherwise healthy. He wasn't degenerating yet. He just got sick. It brings to the surface my own daughter's mortality. And mine too. However I believe that we are each here to do an appointed work. And our days will not be numbered less.
D&C 122:7-9
".....all these things shall give thee experience and shall be for thy good. The Son of Man hath descended below them all. Art thou greater than He? ..... Thy days are known, and thy years shall not be numbered less; therefore fear not ..... for God shall be with you forever and ever."
This is a blog about the joys of raising Sophia. It is intended to be REAL, inspiring, and shed light on the experience of having a terminal child. I hope that our experience will help people in one way or another. I could have never imagined having a terminal baby with special needs. The news was devastating. But there is joy in this journey. And life lessons to be learned. God knows us, individually, and he blesses each of of our lives daily. THIS, IS SOPHIA'S STORY...
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