This is a blog about the joys of raising Sophia. It is intended to be REAL, inspiring, and shed light on the experience of having a terminal child. I hope that our experience will help people in one way or another. I could have never imagined having a terminal baby with special needs. The news was devastating. But there is joy in this journey. And life lessons to be learned. God knows us, individually, and he blesses each of of our lives daily. THIS, IS SOPHIA'S STORY...
Tuesday, May 2, 2017
Family Pictures/Home EEG
These family pictures taken at our house will be treasured forever. This first one I think I'm going to blow up on a canvas for sure. There's too many to put in one post so I'll probably post one or two a day for a while.
We got Sophia set up on a home EEG today. It took hours for the tech and I to hold her and glue electrodes to her head. She was a total champ. She hardly cried or squirmed. They will stay on for 3 days as well as a camera on Sophia. It's only a little weird that different techs from around the country can look into our home at any time haha. It's very sad looking, it makes Jason sad, but in my mind it's really good. This test will help us determine how to best care for Sophia. And that's what I want. I want to care for her the best I can. At the end I want to know I did right by her. That I did the best I could to help her have a good comfortable life. So I'm in a way excited about this test. And I'm grateful for the whole slew of professionals who are, have, and will help me do the best I can for my precious little girl.
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