Something else I'm grateful for is all 8of us and our stuff fitting in one car!
This is a blog about the joys of raising Sophia. It is intended to be REAL, inspiring, and shed light on the experience of having a terminal child. I hope that our experience will help people in one way or another. I could have never imagined having a terminal baby with special needs. The news was devastating. But there is joy in this journey. And life lessons to be learned. God knows us, individually, and he blesses each of of our lives daily. THIS, IS SOPHIA'S STORY...
Wednesday, July 5, 2017
Hayes Reunion!
We made it! By the prayers of my MIL I'm certain! Sophia slept all the way to the exit! Which is an incredible miracle. You see, she Hates her carseat because she can't arch her back...and if she gets too upset about that...then she has trouble breathing. So coming to the family reunion was a decision to make...and I worried there may be a point on the drive, if it came between breathing and being in her carseat, that the safer thing would be to take her out of the seat. Which I really didn't want to do. But we can't just stay home. We want to have a life with her. And we want her to experience life. And be around family. And see new things and create memories. Because when she's gone that's all we'll have.
Something else I'm grateful for is all 8of us and our stuff fitting in one car!
Something else I'm grateful for is all 8of us and our stuff fitting in one car!
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