SLEEP!

I have incredible news! By way of some very generous people Sophia is getting a Night Nurse 5 nights a week! I am so incredibly grateful for people who are generous and giving to our family :-)

Since Sophia was born my priorities have been taking care of her and making memories as a family. But since she is a perpetual infant with special needs I have been increasingly tired and realized that the trajectory I was on was not going to be sustainable.

 Sophia has a humongous team of people working to care for her  :-) We are so grateful  to everyone who cares so deeply about her quality of life and ours :-) This is going to be a HUGE relief to know for sure that I can get sleep EVERY night! And peace of mind to know that she will be with a medical professional :-) With all of my heart I hope that I'm able to give back to moms in my position, in the future :-)

Sophia has been very restful today :-) and I'm so glad for her :-) I haven't been able to snap a picture of her today but here's one that Jason texted me from a couple days ago :-)

I love the color of her eyes right now as they are changing :-)