The really good news is I haven't seen a seizure in weeks! :-) :-) :-)
Sophia Lately...
This is a blog about the joys of raising Sophia. It is intended to be REAL, inspiring, and shed light on the experience of having a terminal child. I hope that our experience will help people in one way or another. I could have never imagined having a terminal baby with special needs. The news was devastating. But there is joy in this journey. And life lessons to be learned. God knows us, individually, and he blesses each of of our lives daily. THIS, IS SOPHIA'S STORY...
Sunday, July 30, 2017
Update Good and Bad
So the bad news is that she is sleeping less and less. I've heard this is common for neuro kids. That's what they call kids with neurological disorders. She only slept 6 hours last night and took a couple of short naps today. Thank goodness we are training the night nurses this week. I'm not sure how much longer I'd be able to stay on this trajectory.
The really good news is I haven't seen a seizure in weeks! :-) :-) :-)
The really good news is I haven't seen a seizure in weeks! :-) :-) :-)
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