Jason and I were chatting the other night as married couples do :-) Just for a moment, and I only allow a moment for thoughts like this, I felt sorry because Sophia was supposed to be crawling under the Christmas tree this year. My husband understood that. And he validated it too. After that, as the conversation went on, he decided to try to cheer me up by calling this Ultimate Motherhood :-) Sophia needs me more than all our other children combined (and they need me plenty!). And I get to fill that role right now! ;-) To be constantly needed has it's challenges, but it has it's rewards too ;-) THIS is ULTIMATE Motherhood! :-)
Unfortunately today ultimate motherhood meant I had to call in reinforcements for the others, and hold my almost 20 pound infant upright for 14 hours :-( Ultimate fatherhood meant Jason had to cancel boys night out with our two oldest :-( Hopefully she'll be feeling better in a couple days and we can get back to the good stuff ;-)
This is a blog about the joys of raising Sophia. It is intended to be REAL, inspiring, and shed light on the experience of having a terminal child. I hope that our experience will help people in one way or another. I could have never imagined having a terminal baby with special needs. The news was devastating. But there is joy in this journey. And life lessons to be learned. God knows us, individually, and he blesses each of of our lives daily. THIS, IS SOPHIA'S STORY...
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