Sophia is not much better today. She's about the same. It's still a privelage taking care of her :-)
This is a blog about the joys of raising Sophia. It is intended to be REAL, inspiring, and shed light on the experience of having a terminal child. I hope that our experience will help people in one way or another. I could have never imagined having a terminal baby with special needs. The news was devastating. But there is joy in this journey. And life lessons to be learned. God knows us, individually, and he blesses each of of our lives daily. THIS, IS SOPHIA'S STORY...
Tuesday, December 5, 2017
Tonight I want to talk about something that has been surprisingly hard. So here it is. Outside of my children there is absolutely nothing expected of me. I closed my daycare (I wasn't very busy out here... but still), I got released from my church calling, I quit the PTA. If the house is messy, nobody holds it against me. If there's no dinner prepared, Jason picks up the slack (he's turned into a really good cook by the way ;-). I'm rarely expected to be in a certain place at a certain time. When I am, half the time I have to cancel, and people are very understanding. And it's all as it should be I guess because of our situation. It's just...an unexpected challenge that comes with the territory of being a special needs parent. You lose yourself a little. Become a little.........invisible.
Sophia is not much better today. She's about the same. It's still a privelage taking care of her :-)
Sophia is not much better today. She's about the same. It's still a privelage taking care of her :-)
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment