These aren't pictures of her actually smiling, but this first picture is however her "smiling mood".
This is a blog about the joys of raising Sophia. It is intended to be REAL, inspiring, and shed light on the experience of having a terminal child. I hope that our experience will help people in one way or another. I could have never imagined having a terminal baby with special needs. The news was devastating. But there is joy in this journey. And life lessons to be learned. God knows us, individually, and he blesses each of of our lives daily. THIS, IS SOPHIA'S STORY...
Friday, April 28, 2017
She Smiles!
Genetic testing came back last week and Sophia definitely has pontocerabellar hypoplasia type 2A. Smiling is not something we could expect. "There is no motor or mental development". That's what the NORD says. But she smiles! I can tell when one is coming. She gets in this mood, usually when she first wakes up for the day or from a nap. She's alert, focusing her eyes, and seems pleased. Then, sometimes, she'll smile. I saw the first few, and even had a couple witnesses who assured me I wasn't just being hopeful ;-) Then Jonah saw 2 big ones in a row :-) Then this morning Jason kissed her on the mouth and she smiled up at him! He LIT UP and asked if I saw it, which I did :-) Then this afternoon, she was in her smiling mood, and Sarah played peekaboo with her. I kid you not, she smiled 5 times! LOVE this day!!!
These aren't pictures of her actually smiling, but this first picture is however her "smiling mood".
These aren't pictures of her actually smiling, but this first picture is however her "smiling mood".
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