Sophie's Birthday is COMING!!!

YOU GUYS! We are so extremely excited that Sophia is going to have a birthday! Feb 28th! Which I've also just learned is worldwide rare disease day how cool is that!

We just can't believe that we've come so far and she's doing so amazing! :-) We consider ourselves the luckiest parents in the world. I believe I speak for both of us when I say that we accept whatever may come, but the fact that she is going to probably have a birthday is really an incredible blessing!

We are planning a humongous party to which everyone is going to be invited of course :-) I'm very excited about the venue, we are renting out and old roller skating rink! It sits on top of a gas station in a tiny little town called Veyo :-) A town I used to live in as a toddler and I remember going to that very same skating rink as a child :-)

The only catch is her birthday party will NOT be on or near her birthday. We're going to have to push it out a month or two because of this deadly flu season :-( We will still have some kind of special celebration on the day of course :-) and we will look forward to a wonderful celebration in a few months!

 Sophia today :-)