Sophia Saying Her Prayers...
This is a blog about the joys of raising Sophia. It is intended to be REAL, inspiring, and shed light on the experience of having a terminal child. I hope that our experience will help people in one way or another. I could have never imagined having a terminal baby with special needs. The news was devastating. But there is joy in this journey. And life lessons to be learned. God knows us, individually, and he blesses each of of our lives daily. THIS, IS SOPHIA'S STORY...
Tuesday, June 27, 2017
Medically Complex Children's Waiver
Hallelujah for the medically complex children's waiver! I received word yesterday that Sophia has been accepted into the program :-) which basically means that because she is so medically complex, she can be on Medicaid without them taking our income into account! What I'm looking most forward to are the respite hours offered on the waiver! I think it's 13 hours a month that they will send a nurse out to the house to stay with Sophia so we can get relief :-) Hospice has something similar but they are volunteers and not nurse's :-) Nurses make me feel safe :-) Anyways now that she's accepted you can imagine there's endless paperwork because it's state assistance so I'm too busy to post any further tonight :-) You'll have to wait until tomorrow for me to explain the picture from yesterday :-)
Sophia Saying Her Prayers...
Sophia Saying Her Prayers...
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