Getting back to my post from a couple days ago. Here is why I took this picture. I was super proud of myself! From the time we got home from the hospital to this day (about a month ago), I was feeling pretty dependent on other people. I needed my Mommy to come live with me. I needed a driver everywhere I went so I could watch Sophia like a hawk. And even with all the help, it was scary. But little by little I became comfortable with machine after machine. I became comfortable knowing what is normal for Sophie, how to help her, and when (and when not) to panic. So here I am, driving Sophia and Max up to Salt Lake, all by myself! (Jason was on a business trip and meeting us up there btw.) It was her first road trip :-) Take a good look at this picture. There is the oxygen tank, the special car seat (actually called a "bed seat"), the pulse oximeter, and the feeding machine. Now the feeding machine I was particularly proud of. At home it hangs on a tall pole, designed just right. The bag has to be hanging 6 inches above the machine in order for it to pump correctly. To get it to work in the car, I took a phone charging cord, tied the bag through the headrest, and stacked the machine on top of a bag of wipes. And that folks, is why I took the picture. I pretty much kicked butt that day. Off we went to Salt Lake and we made it without much trouble at all. That was probably the first time I felt like I really "got this". :-)
Sophia Today...
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