I keep one copy in the entryway and another in my car. Let me tell you why. If we do not have this form and someone calls an ambulance....they will have to take her away from us to try to save her life. As you know our beautiful girl is terminal. And her short life is not easy...
We believe in the pre-mortal life. We believe that Sophia existed before this and will continue to exist after. And we believe that because she was SO righteous all she needed from this Earth life was a body. She didn't need to be tested the same way. She is Celestial already. We believe that when she does pass away her spirit will be separated from her body. She'll be free of discomfort and confusion. She will return to her Heavenly Father and Jesus Christ who will encircle her in their infinite love.
In time she will be reunited with her body. But at that time...it will be perfect....with a whole brain. Nothing missing. Nothing wrong.
When she passes she will wait for us in Paradise with relatives who love her. Her sister Mariahnna, her Great Grandma Patricia Rose, her Great Grandpa Chad, Her Great Grandma and Grandpa Meng, Great Grandpa Hayes, her Great Aunt Verlee, her Nana, and many many others. We believe this to be true with all of our hearts. The Holy Ghost has testified it to us. And we could never deny what we have felt. This is how we believe it will be.
Now. We love all of our children. Any of our other children, we would do whatever it takes to save them, of course. Defibrillate, intubate, CPR, trache if you have to, whatever. Because they would have a chance at a long healthy life with us. To grow up. Get married. Have children. And pursue happiness in this life.
But Sophia's body is broken. And her disease is degenerative. Her condition will degenerate to the point of passing away. If we do something violent to save her...we'd be starting at that point at best.
That being the case, if she is gone, and at peace, and happy...why would we force her back into a broken body and make her stay here with us, just so that she can die all over again in a short time?
Because we would miss her? Yes. We will. I'm terrified of losing her. I have nightmares about it. Our lives will never be the same without her. But she will be okay. And we will see her again.
As her parents we believe it is our job to protect her. So please. If she passes... and she's gone..... Please. Do not resuscitate. Leave her be. Let her rest. And let me hold her. It's inevitable. Don't make her do it twice. Don't hurt our little girl. She will be ALRIGHT. It sounds cliche but she will be in a better place. With Heavenly Father (and Mother) and Jesus.
Death is nothing at all
I have only slipped away to the next room
I am I and you are you
Whatever we were to each other
That, we still are
p.s. this post was just something that has been on my mind lately and I felt I wanted to blog about it. She's not showing any serious decline or anything like that yet ;-) In fact.....
Sophia rolled over today! Belly to back, four times! This video looks like side to back but that's because it's the tail end. She went from FULLY on her belly, to her side, to her back all by herself! I tested it 3 times....she definitely did this on purpose! Way to beat the odds girl!
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