Saturday, August 19, 2017

Saving Her Life Daily


The last week it's felt like I'm saving her life everyday. Sophia is coughing a lot from the throw up that she's aspirated over the last week. I've had to use the suction machine more times in the last week then I have in her entire life. It's been pretty scary. I have hope that just like with the seizures we'll figure this out and get ahead of it. I don't think I've seen a seizure in over a month. Despite the stress we're still finding Beautiful Moments everyday :-) You should have seen the kids gathered around her on the blanket on the lawn today. I should have snapped a picture of that too but I didn't want to miss out on the moment myself by running off to get my camera :-)





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