All clean and ready for surgery!
This is a blog about the joys of raising Sophia. It is intended to be REAL, inspiring, and shed light on the experience of having a terminal child. I hope that our experience will help people in one way or another. I could have never imagined having a terminal baby with special needs. The news was devastating. But there is joy in this journey. And life lessons to be learned. God knows us, individually, and he blesses each of of our lives daily. THIS, IS SOPHIA'S STORY...
Thursday, August 31, 2017
Feeding Tube Came Out!
So this morning we learned that Sophia's feeding tube had fallen out during the night. The balloon that holds it in place had a leak in it. And...apparently...our stomach tissue can fix a hole like REALLY fast! I've heard from Mom's of "tubies" that eventually it would pop out or accidentally get pulled out and I'd have to deal with it. I didn't think it was a big deal at first. I figured it was like an earring, keep the stud in for six weeks and the hole stays open. NOT the case! I learned this morning that... half an hour to and hour... and the thing is closed! Poor little girl has to go to surgery tomorrow morning to get it reopened :-( in the meantime she's got this darn thing back up her nose :-(
All clean and ready for surgery!
All clean and ready for surgery!
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