On the bright side we still get to see her smile because she often does so after vomiting :-) and she absolutely loves to clean off in the bath with mom :-)
This is a blog about the joys of raising Sophia. It is intended to be REAL, inspiring, and shed light on the experience of having a terminal child. I hope that our experience will help people in one way or another. I could have never imagined having a terminal baby with special needs. The news was devastating. But there is joy in this journey. And life lessons to be learned. God knows us, individually, and he blesses each of of our lives daily. THIS, IS SOPHIA'S STORY...
Tuesday, October 24, 2017
Better but still not great
Sophia is feeling better than she was in the hospital but she's still not feeling great. Please pray that we can figure out how to help her. Today she threw up probably more than she ever has in 24 hours :-( I'm getting to be a pro at the suction machine. Also she's congested which can be dangerous for her so we have to thin out her milk with Pedialyte. So she's not getting the nutrition she needs. It's incredible how a tiny little cold can wreak so much havoc on her :-(
On the bright side we still get to see her smile because she often does so after vomiting :-) and she absolutely loves to clean off in the bath with mom :-)
On the bright side we still get to see her smile because she often does so after vomiting :-) and she absolutely loves to clean off in the bath with mom :-)
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