The pediatric neurologist, who was amazing btw, does think Sophia is having seizures. We start anti seizure meds tomorrow. I now understand why anti seizure meds. The more seizures happen the more they will happen. But I feel good about this specialist. She understands and respects our desire to balance quality of life and longevity so I feel I can trust her suggested medicines.
We made it home and the kids traveled really well. But we are tired. As I watch Sophia drift off to sleep tonight I can't help but think about how perfect she is. She really is.
Quote for the day "Do Not Cry Because it's Over. Smile Because it Happened"--Dr Suess. I'm so grateful I got Sophia. In whatever way she had to come. She's perfect and I love her so much.
This is a blog about the joys of raising Sophia. It is intended to be REAL, inspiring, and shed light on the experience of having a terminal child. I hope that our experience will help people in one way or another. I could have never imagined having a terminal baby with special needs. The news was devastating. But there is joy in this journey. And life lessons to be learned. God knows us, individually, and he blesses each of of our lives daily. THIS, IS SOPHIA'S STORY...
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