Support

Today I met a friend. We've been texting since the beginning (for me). Her son Jett had the exact same type of this same rare disorder. He lived to be 5 (and lives on). He passed away a couple days after Sophia was born. Actually on the day we were told of her diagnosis. It is SO amazing to hear about my new friends journey. I also met her sister and Jett's father. They were all so excited to meet Sophie and hold her. How incredible it felt to talk with people I suddenly have so much in common with. This is a really hard thing, but today I feel less alone. There is a mom out there who has been through what I am going through...and what I will go through. And she still has A LOT of light. That's REALLY reassuring! Tennille I can't wait to see you again! 

Here are some pictures we took at lunch...

http://fighterjett.blogspot.com/2013/01/long-due-update-1-year-anniversary.html

Here is a link to Tennille's blog about her son Jett. I've been reading it a lot as you can imagine :-) I chose to link this post because she writes so much like me in this one ;-)