Rolling

I thought that the hardest thing I was going to do in 2017 was give birth without pain medication. After the holidays I prepared solely for that and anticipated my reward.

 There are many things I have/am mourning since Sophia was born. We won't get to raise her :-( (in this life anyways. Mormons believe that when children die before the age of accountability, which is 8, that righteous parents will get to raise their babies in the next life). Max will be alone every other Christmas :-( I won't get to see her walk or talk (again, in this life) :-( Sarah had finally got a sister in our family :-(

Here's one that didn't hit me right away. My daughter is severely mentally and physically disabled. The NORD says so. No motor or mental development. The more I notice it in her, the more I notice people with disabilities in the world. The more my heart goes out to each and every person who is disabled. (Side note-lugging her oxygen around has made me ever so grateful for handicapped parking, entrances, bathrooms etc. I navigate my world through handicapped eyes now and I'm so thankful our society is so conscious of us)

 With Sophia sometimes she has good tone and sometimes she's floppy. Sometimes she'll look right at you and sometimes she just looks up. Sometimes she drinks a bottle, and sometimes the suck swallow breathe reflex just isn't there.

But today she did something new! :-) :-) :-) The pediatrician says as long as she is doing new things there's no need to go on hospice yet. So every day she does something new is a GOOD day. On those days I'm high as a kite and feeling really strong. I usually don't cry on those days :-) Today she rolled from her back to her side. All by herself! Love that little miracle girl. 

 

And look how chubby she's getting! 

More professionals....

 p.s. I finally added photo's to the may 8th post, and fixed my late night grammar, if anyone cares to look back ;-) There's another really pretty professional one of Sophie.