This is a blog about the joys of raising Sophia. It is intended to be REAL, inspiring, and shed light on the experience of having a terminal child. I hope that our experience will help people in one way or another. I could have never imagined having a terminal baby with special needs. The news was devastating. But there is joy in this journey. And life lessons to be learned. God knows us, individually, and he blesses each of of our lives daily. THIS, IS SOPHIA'S STORY...
Wednesday, May 17, 2017
Primary Children's
Heading up north tomorrow. Sophia has an appointment with a pediatric Neurologist at primary children's on Monday. Figured I'd spend the weekend up there visiting family since we have to make the drive anyways. You would not BELIEVE all the stuff I have to remember to pack. Of course if I forget something I can just just stop by Wal-Mart...NOT! If I forget something I'll be stopping by the hospital! No pressure! Don't worry ;-) I'm certain I've got all the important stuff 😣😛😀
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